Dr. E. Murakami Centre for Lyme

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-Welcome to our Site -  at http://murakamicentreforlyme.org
Welcome!  Without the generous support of the Society's donors, Dr. Murakami would not be able to undertake the extensive Lyme disease education initiatives that you see listed here. A huge, heartfelt, THANK YOU goes out to each and every one of you!         

Any feedback or notice of problems encountered would be very much appreciated at admin@murakamicentreforlyme.freehostia.com

 


The Loss of Dr. Allison Bested From CCDC

With sadness we see the departure of Dr. Allison Bested from the Chronic Complex Diseases Clinic.    I was very grateful for the chance to present three cases of third stage Lyme disease,  all residents from B.C.,   referred to three B.C. Infectious disease specialists.    All three were treated with one month of intravenous medication by the specialists and all three failed to improve.   These patients were subsequently treated with three months of intravenous medications and they are now leading a normal life.  (these cases are available for viewing on YouTube).   The Medical profession condemns the proper treatment of chronic Lyme Disease and refers to it as a syndrome,   not an infection,   and a serious fear factor is present in our association.   My medical class-mate Dr. Pat McGeer has done research and was able to culture live spirochetes of Borelia burgdorferi on post mortems of Alzheimer cases - Journal of Neurorinflammation Sept , 2008.   

 

My personal wish is that we share our knowledge and sit at one table to compare notes, otherwise the politicians will have to pass laws preventing the harassment of doctors as it has been done in fifteen American States.

Dr. Ernie Murakami M.D. Clinical Associate Professor Emeritus UBC.
B.A Bacterilogy and Immunology UBC


Elizabeth Wood - The Lyme Community has Lost a Valued Advocate

Elizabeth Wood of Emerson MB has passed away

 

Elizabeth fought Lyme Disease for more than twenty years.  In spite of her personal poor health and many other pressing obligations,  Elizabeth got busy.  Until Elizabeth,  "Lyme Disease doesn't exist in Manitoba"   She put it front and centre founding a Manitoba support group and tirelessly advocating for Lyme patients.  Just Google her name in the Winnipeg Free Press to get a taste of the effectiveness of her advocacy.  Her death is a tragic loss.

 

Elizabeth Wood's family asks that in lieu of flowers donations in Liz's memory be sent to The Dr. E. Murakami Centre for Lyme Research, Education and Assistance Society by PayPal, Canada Helps or mailing a cheque, tax donation receipts will be issued. http://www.murakamicentreforlyme.org/Donating.htm   If you donate,  please also send a note or card indicating that you have done so to:
Lorne Wood and family
Box 598
Emerson MB R0A 0L0

 

The obit announcement and guest book may be accessed by following the link below: -

 

http://passages.winnipegfreepress.com/passage-details/id-211755/name-Elizabeth_Wood/min-run-date-1395205200/order-publish_date%7CDESC,last_name%7CASC/


Volunteers Needed -

 

The Murakami Centre for Lyme is welcoming more board members, both voting and non-voting. 

The voting positions would be suitable for those located in Hope or Chilliwack BC areas and can attend all regular meetings. 
Non-voting members are not required to attend board meetings. Anyone interested, please contact Dr Ernie Murakami by phone 604-869-9922 or email
lymehope@hotmail.ca


Dr Murakami Lectures and Q & A Now Available on Skype -

 

Dr Murakami is now able to successfully deliver his lectures and Q&A via Skype to anywhere in the world.  Any groups wishing to organize a lecture with him via Skype, please contact Mary email  mdelisser@gmail.com

 


Tick Survey

Dr Murakami asks that anyone who has removed a tick from a human send them to him. He wants them whether dead or alive along with a brief note on how the tick was removed, ie twisted out, tweezers with constant tension or by tension/relax method. These ticks will be checked by microscopy for missing mouth parts and research. Send your ticks, from anywhere at all, to him at:
Box 1240,
Hope BC V0X 1L0


Lyme in the News -

Here is the radio interview with Heather King that was aired on live 88.5fm in Ottawa 26th November 2012.
If more lymies would write their story and send to newspapers and radio stations, stand tall and shout our story, the bigger difference we'll make.

http://www.myspace.com/music/player?sid=89614647&ac=now


The Chronic Complex Diseases (CCD) study could be beneficial for Lyme patients and so the Murakami Lyme Society asks that you make your own informed decision. Keep in mind also that you can leave the study at any time.   For more information please follow these links:

CCD Study Flyer with Tear-offs   CCD Study Consent Form   then if interested contact -
Shoshana Parker
email: sparker@cheos.ubc.ca
phone: 604-682-2344 X 62492


Participants Wanted for Scientific Study

. Dr Murakami is looking for anyone who fits the following criteria:
• Bull’s eye rash
• Given only 2 capsules Doxycycline
• Have photo of rash
Only those who fit the above can be included in this study. Contact Dr Ernie Murakami, phone 604-869-9922.


THE DREAM WHICH CAME TRUE. 

The month of May is for the spreading of the information on Lyme disease to the general public.
I wondered what I could do personally differently besides giving lectures on the international level and locally such as next week at the Boucher Institute of Medicine to the graduating class..
I thought that I would specifically honour my Parents and Dr. Robert Kerr and wife Lois,( Clinical Associate Professor head of the department of Internal Medicine at the University of British Columbia Medical School).
I was fortunately able to reside with Dr. Kerr's family when they took me on as an older brother for their three sons John, Jamie and Charles. 
They treated me like a family member and we participated in golfing skiing and attending church.
I was always interested in Medicine when my class mate had died of abdominal injuries in Lillooet B.C. during our forced Internship during WWII since there was no Doctor or Hospital available then for him.
As well when my sister was the first citizen to receive Penicillin in Vernon B.C. and when she came back to life from a comatose state my interest in Medicine became an obsession.
My parents would have liked me to take up medicine but they were very realistic and advised me constantly that they were financially not able to consider the cost of a Medical career.

One evening Dr. Kerr asked me what my plans were for the future I and specified that I was interested in a medical career but not it was not financially possible due to losses from the internment.
To this day I recall him saying "you go into Medicine and not worry about a thing".   Without his family and my parents support I would not have have had the confidence and the financial support that I needed to become a physician.

I would like to thank and salute my parents and Dr. R. B. Kerr family for a future in medicine that has been a dream come true.

 

      Mr. James and Mrs. Ruth Murakami                                                                       Mrs. Lois Kerr and Dr. Robert Kerr.

                                
 


NEW RADIO TALK SHOW FEATURING ... our very own Dr. Murakami  

 
The good doctor is reaching out using a new medium! Dr. Murakami is going to be hosting a radio talk every Sunday from 7-9 pm EST on the In Short Order radio show for health care professionals at BlogTalkRadio. In case you're wondering what, exactly, BlogTalkRadio is, here's some info taken directly from their website:
BlogTalkRadio allows anyone, anywhere the ability to host a live talk radio show online... (It) empowers citizen broadcasters to create and share their original content, their voices and their opinions in a worldwide public forum. Today, BlogTalkRadio is the largest and fastest growing online talk radio network. A truly democratized medium, BlogTalkRadio has tens of thousands of hosts and millions of listeners tuning in and joining the conversation each month.
Tune in to http://www.blogtalkradio.com/in-short-order every Sunday from 7-9 pm EST to hear what Dr. Murakami has to share about Lyme disease.

LECTURE VIDEO
 
Check out Dr. Murakami's lecture video from the Chronic Cerebrospinal Venous Insufficiency (CCSVI) Conference held in Dartmouth, Nova Scotia on October 21, 2011.
 

SYPHILIS THEN, LYME NOW
 

The serious epidemic of Lyme disease is present now but not "prominent" in Canada because the Medical divide that exists in our association.  Doctors are told that Lyme disease is a non-existent rare infection and without a proper ELISA test (which is grossly inadequate) the diagnosis of Lyme disease is being misdiagnosed.

The federal government has stated that Lyme disease is a clinical diagnosis and a positive lab test is beneficial but not necessary in the establishment of a diagnosis but unfortunately there are differences of thought by our peers.

We have adopted the American IDSA guidelines for practicing physicians and in Canada we have adopted these guidelines without any previous discussions of having our own Canadian guidelines.

We must become more educated and clinically aware of this most rapidly growing vector borne infection. Most recently, the naysayers in the United States have admitted to 300,000 cases annually up from 30,000. This would reflect automatically 30,000 (10%) as a minimum number of cases in Canada and yet only about a few hundred cases are annually reported across Canada which is extremely low and misleading.

Patients are suffering needlessly, expending monies across the border and into Europe for proper treatment and diagnosis. This cannot continue and as physicians we must be more aware that the symptoms of Lyme disease which is and are being misdiagnosed. To give an example, MS in Canada is the absolute highest in the world, 240-340 cases per 100,000 and we have the lowest number of Lyme disease in the world  (WHO).

The big divide has led to the necessity of the legal system stepping in to protect Lyme Literate doctors. Twelve USA states have become involved since the medical profession will not openly discuss all aspects of this disease. Statutes and laws are now in place for the protection of Lyme literate physicians and their charts cannot be taken, doctors cannot be cross-examined, their licenses cannot be taken away.

It is simply a matter for our profession to discuss this disease as we have with all other diseases in the world. Clinicians must include Lyme disease and co-infections in the differential diagnosis and be cognizant of all the symptoms that can occur since it is a multi-organ system failure that occurs.

At the present time, patients suffer needlessly; mentally, physically and financially with the most common cause of death being suicide. The answer appears to be very simple that we must dialogue openly and regularly. 

On the side of being optimistic there are increasing numbers of medical doctors and naturopathic doctors treating Lyme disease. This would indicate a greater understanding and acceptance for this disease and it is hoped that this will continue with greater alacrity, education and hopefully better lab testing with mutual medical understanding by the 
"divided" physicians.  There is no time for complacency.

 

Dr. Ernie Murakami, MD, BA in Bacteriology and Immunology

Clinical Associate Professor Emeritus University of British Columbia

President, Dr. E. Murakami Centre for Lyme


 

Schmidt Report on Chronic Lyme Disease in British Columbia
 
This 56-page document, obtained through a Freedom of Information request to government by a long-time Lyme sufferer, received some well-deserved major coverage in the Vancouver Sun at the end of March 2011. Dr. Murakami was particularly encouraged by three of the eight recommendations put forward in this report as follows:
 
(c)  Chronic Lyme and related diseases present a significant burden on patients who are sometimes given few options or hope. A realistic but flexible approach is needed for each patient with their physician in determining the patient?s management of Lyme disease or other related infectious diseases. This should include a range of treatment options that have the potential for symptom relief and quality of life improvement.

 

(d)  The Province of BC should satisfy itself that that a doctor may prescribe therapy to a patient that departs from prevailing medical practice, unless it can be demonstrated that the therapy poses a greater risk to patient care or safety than does prevailing medical practice.

 

(e)  The Province of BC should satisfy itself that that a doctor will not be investigated solely on the grounds that the registrant practices complementary medicine or uses non-traditional therapies.

 
These particular recommendations were derived from page 44 of the report. If you want to read through the report in its entirety, click here for a pdf copy.
  

Public Health Agency of Canada in the News 

 

You've likely heard by now that the Public Health Agency of Canada (PHAC)  announced on February 25, 2011 that, due to rigorous quality-control procedures, they had ascertained that 24 patients out of 1,557 samples tested by the National Microbiology Lab for Lyme disease had received false-negative test results. If you haven't heard and want to read more, the statement can be viewed here.

 

While news of false-negatives is not particularly surprising to those of us dealing with Lyme on a regular basis, PHAC is to be applauded for making this information public. In addition, it was encouraging to see PHAC publicly reaffirming (not once, but twice in the same statement) that Lyme disease is a clinical diagnosis, as in:

 

  1. "When someone shows symptoms of Lyme disease and might have been exposed to the ticks that carry it, guidelines recommend that physicians treat the illness, even if it has not been confirmed with laboratory testing."
  2.  
    "All laboratory tests have a margin of error, which is why physicians are encouraged to follow the recommended treatment guidelines and treat patients they suspect may have Lyme disease with antibiotics, even without the results of lab tests."

 

Now, if we could just get the medical profession to start following the aforementioned guidelines! 

 


A MIND-BOGGLING STORY (but sadly, not unfamiliar)

 

We are honoured to share with you the fascinating journey of one young lady and her parents - from Africa to Canada and from health to Lyme and back again.

From the outside (as told by J.'s parents)

 

Having lived in Africa for 10 years, we were used to being alert for signs of illnesses like malaria and filaria; but in April 2008 when our 11-year old daughter, J., was having more and more difficulty finishing her homework assignments on time, we had no idea we were not looking at a behavioral issue, but rather the start of a long journey with Lyme disease. . . (continued)

Looking in (as told by J.S.)

 

It was becoming more frustrating every day/week. I didn't want help, but otherwise I couldn't get places fast. I didn't want to tell my parents, because I didn't want to seem incapable. This was the situation:  in the first half of May, 2008, I started repeating my steps, walking somewhere, then stopping and touching a place a few times. It didn't really bother me a lot, but it was frustrating that it was something I knew was wrong, but I didn't want to tell my parents about it, because it seemed so small and unexplainable . . . (continued)


NATUROPATHIC PHYSICIANS, LYME DISEASE, AND YOU

 

Dr. Murakami's presentation to the BC Naturopathic Physicians' annual conference this past fall continues to generate substantial interest from those in the profession who are keen to learn how to treat Lyme disease using antibiotic protocols, which is certainly heartening! In case you're not familiar with the difference between allopathic (conventional) MDs and naturopathic (alternative) NDs, the British Columbia Naturopathic Association explains it this way:

 

  • "A Naturopathic Physician (ND) is trained in the methods of treatment commonly referred to as alternative medicines" (http://www.bcna.ca/files_3/faqs.php), and 

 

  • "A difference between allopathic and naturopathic care may lie in the NDs emphasis on nutrition and diet, lifestyle change, and the importance for patients to manage their own long-term health" (http://www.bcna.ca/files_3/naturophatic.php).

 

This will be an important distinction to remember if you choose to go the ND route. Just because NDs now have the authority to write prescriptions doesn't mean that they will want to use antibiotics as their first-line treatment for Lyme disease. When meeting with your ND, keep an open mind and be upfront when discussing your treatment options, including the use of antibiotics. 

 

Also remember that Dr. Murakami continues to be available to consult with both MDs and NDs.

   


 

  LATEST NEWS

 

We've added an Archives section to capture all the information that is just too important to delete forever, but that is being replaced on the Home page by more current information. If you're looking for something that used to be on this page but is no longer, check out the Archives!


REMINDER:  Dr. Murakami continues to be available to consult with physicians who are interested in learning more about Lyme disease. If you are a physician, or know of one who wants to develop a more in-depth understanding of Lyme and appropriate treatment protocols, please call 604-869-9922. Dr. Murakami will return the call as soon as possible.  

 

IN THE ARCHIVES . . .

 

  • Dr. Murakami's feedback on his Nova Scotia presentations in November 2010.
  • The mp3 link to Dr. Murakami's interview with CHLY Radio in August 2010.

 

  

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