-Welcome to our Site -
Welcome! Without the
generous support of the Society's donors, Dr. Murakami would
not be able to undertake the extensive Lyme disease education
initiatives that you see listed here. A huge,
heartfelt, THANK YOU goes out to each
and every one of
Any feedback or notice of problems encountered would be very
much appreciated at
The Loss of Dr. Allison Bested From CCDC
With sadness we see the departure of Dr. Allison
Bested from the Chronic Complex Diseases Clinic.
I was very grateful for the chance to present
three cases of third stage Lyme disease, all
residents from B.C., referred to three
B.C. Infectious disease specialists.
All three were treated with one month of
intravenous medication by the specialists and all
three failed to improve. These
subsequently treated with three months of
intravenous medications and they are now leading a
normal life. (these cases are available for
viewing on YouTube). The Medical
profession condemns the proper treatment of
chronic Lyme Disease and refers to it as a
syndrome, not an infection,
and a serious fear factor is present in our
association. My medical class-mate Dr.
Pat McGeer has done research and was able to
culture live spirochetes of Borelia burgdorferi on
post mortems of Alzheimer cases - Journal of
Neurorinflammation Sept , 2008.
My personal wish is that we share our knowledge
and sit at one table to compare notes, otherwise
the politicians will have to pass laws preventing
the harassment of doctors as it has been done in
fifteen American States.
Dr. Ernie Murakami
M.D. Clinical Associate Professor Emeritus UBC.
B.A Bacterilogy and
Elizabeth Wood - The Lyme Community has Lost
a Valued Advocate
Elizabeth Wood of Emerson MB has passed away
Elizabeth fought Lyme Disease for more than twenty
years. In spite of her personal poor health
and many other pressing obligations,
Elizabeth got busy. Until Elizabeth, "Lyme
Disease doesn't exist in Manitoba" She
put it front and centre founding a Manitoba
support group and tirelessly advocating for Lyme
patients. Just Google her name in the
Winnipeg Free Press to get a taste of the
effectiveness of her advocacy. Her death is
a tragic loss.
Elizabeth Wood's family asks that in lieu of
flowers donations in Liz's memory be sent to The
Dr. E. Murakami Centre for Lyme Research,
Education and Assistance Society by PayPal, Canada
Helps or mailing a cheque, tax donation receipts
will be issued. http://www.murakamicentreforlyme.org/Donating.htm
If you donate, please also send a note or
card indicating that you have done so to:
Lorne Wood and family
Emerson MB R0A 0L0
obit announcement and guest book may be accessed
by following the link below: -
Volunteers Needed -
The Murakami Centre for Lyme is welcoming more
board members, both voting and non-voting.
The voting positions would be suitable for those
located in Hope or Chilliwack BC areas and can
attend all regular meetings.
Non-voting members are not required to attend
board meetings. Anyone interested, please contact
Dr Ernie Murakami by phone 604-869-9922 or email
Dr Murakami Lectures and Q & A Now Available
on Skype -
Dr Murakami is now
able to successfully deliver his lectures and Q&A
via Skype to anywhere in the world. Any groups
wishing to organize a lecture with him via Skype,
please contact Mary email
Dr Murakami asks that anyone who
has removed a tick from a human send them to him. He wants
them whether dead or alive along with a brief note on how the
tick was removed, ie twisted out, tweezers with constant
tension or by tension/relax method. These ticks will be
checked by microscopy for missing mouth parts and research.
Send your ticks, from anywhere at all, to him at:
Hope BC V0X 1L0
in the News -
radio interview with
that was aired on live
88.5fm in Ottawa 26th November 2012.
If more lymies would write their story and send to
newspapers and radio stations, stand tall and shout our
story, the bigger difference we'll make.
The Chronic Complex Diseases (CCD) study
could be beneficial for Lyme patients and so the Murakami
Lyme Society asks that you make your own informed decision.
Keep in mind also that you can leave the study at any time. For more information please follow these links:
CCD Study Flyer with Tear-offs
CCD Study Consent Form then if
interested contact -
phone: 604-682-2344 X 62492
Participants Wanted for Scientific Study
. Dr Murakami is looking for
anyone who fits the following criteria:
• Bull’s eye rash
• Given only 2 capsules Doxycycline
• Have photo of rash
Only those who fit the above can be included in this
study. Contact Dr Ernie Murakami, phone 604-869-9922.
WHICH CAME TRUE.
The month of May is for
the spreading of the information on Lyme disease to the
I wondered what I could do personally differently besides
giving lectures on the international level and locally such
as next week at the Boucher Institute of Medicine to the
I thought that I would specifically honour my Parents
and Dr. Robert Kerr and wife Lois,( Clinical Associate
Professor head of the department of Internal Medicine at the
University of British Columbia Medical School).
I was fortunately able to reside with Dr. Kerr's family when
they took me on as an older brother for their three sons
John, Jamie and Charles.
They treated me like a family member and we participated in
golfing skiing and attending church.
I was always interested in Medicine when my class mate had
died of abdominal injuries in Lillooet B.C. during our
forced Internship during WWII since there was no Doctor or
Hospital available then for him.
As well when my sister was the first citizen to receive
Penicillin in Vernon B.C. and when she came back to life from
a comatose state my interest in Medicine became an
My parents would have liked me to take up medicine but they
were very realistic and advised me constantly that they were
financially not able to consider the cost of a Medical
One evening Dr. Kerr asked me what my plans were for the
future I and specified that I was interested in a medical
career but not it was not financially possible due to losses
from the internment.
To this day I recall him saying "you go into Medicine and
not worry about a thing". Without his family and
my parents support I would not have have had the confidence
and the financial support that I needed to become a
I would like to thank and salute my parents and Dr. R. B. Kerr
family for a future in medicine that has been a dream come
Mr. James and Mrs. Ruth Murakami
Mrs. Lois Kerr and Dr. Robert Kerr.
TALK SHOW FEATURING ...
own Dr. Murakami
The good doctor is
reaching out using a new medium! Dr. Murakami
is going to be hosting a radio talk every Sunday from 7-9
pm EST on the In Short Order radio show for health care
professionals at BlogTalkRadio. In case you're wondering what,
exactly, BlogTalkRadio is, here's some info taken directly
from their website:
allows anyone, anywhere the ability to host a live talk
radio show online... (It) empowers citizen
broadcasters to create and share their original content,
their voices and their opinions in a worldwide public forum.
Today, BlogTalkRadio is the largest and fastest growing
online talk radio network. A truly democratized medium,
BlogTalkRadio has tens of thousands of hosts and millions of
listeners tuning in and joining the conversation each month.
Check out Dr. Murakami's lecture video from the Chronic
Cerebrospinal Venous Insufficiency (CCSVI) Conference held in
Dartmouth, Nova Scotia on October 21, 2011.
The serious epidemic of Lyme disease is present now but not
"prominent" in Canada because the Medical divide that exists
in our association. Doctors are told that Lyme disease is a
non-existent rare infection and without a proper ELISA test
(which is grossly inadequate) the diagnosis of Lyme disease
is being misdiagnosed.
The federal government has stated that Lyme disease is a
clinical diagnosis and a positive lab test is beneficial but
not necessary in the establishment of a diagnosis but
unfortunately there are differences of thought by our peers.
We have adopted the American IDSA guidelines for practicing
physicians and in Canada we have adopted these guidelines
without any previous discussions of having our own Canadian
We must become more educated and clinically aware of this
most rapidly growing vector borne infection. Most recently,
the naysayers in the United States have admitted to 300,000
cases annually up from 30,000. This would reflect
automatically 30,000 (10%) as a minimum number of cases in
Canada and yet only about a few hundred cases are annually
reported across Canada which is extremely low and
Patients are suffering needlessly, expending monies across
the border and into Europe for proper treatment and
diagnosis. This cannot continue and as physicians we must be
more aware that the symptoms of Lyme disease which is and
are being misdiagnosed. To give an example, MS in Canada is
the absolute highest in the world, 240-340 cases per 100,000
and we have the lowest number of Lyme disease in the world
The big divide has led to the necessity of the legal system
stepping in to protect Lyme Literate doctors. Twelve USA
states have become involved since the medical profession
will not openly discuss all aspects of this disease.
Statutes and laws are now in place for the protection of
Lyme literate physicians and their charts cannot be taken,
doctors cannot be cross-examined, their licenses cannot be
It is simply a matter for our profession to discuss this
disease as we have with all other diseases in the world.
Clinicians must include Lyme disease and co-infections in
the differential diagnosis and be cognizant of all the
symptoms that can occur since it is a multi-organ system
failure that occurs.
At the present time, patients suffer needlessly; mentally,
physically and financially with the most common cause of
death being suicide. The answer appears to be very simple
that we must dialogue openly and regularly.
On the side of being optimistic there are increasing numbers
of medical doctors and naturopathic doctors treating Lyme
disease. This would indicate a greater understanding and
acceptance for this disease and it is hoped that this will
continue with greater alacrity, education and hopefully
better lab testing with mutual medical understanding by the "divided"
physicians. There is no time for complacency.
Dr. Ernie Murakami, MD, BA in
Bacteriology and Immunology
Clinical Associate Professor Emeritus
University of British Columbia
President, Dr. E. Murakami Centre for
Schmidt Report on Chronic Lyme
Disease in British Columbia
56-page document, obtained through a Freedom of
Information request to government by a long-time Lyme
sufferer, received some well-deserved major coverage in the
Vancouver Sun at the end of March 2011. Dr. Murakami was
particularly encouraged by three of the eight
recommendations put forward in this report as
(c) Chronic Lyme and related diseases present a
significant burden on patients who are sometimes given few
options or hope. A realistic but flexible approach is needed
for each patient with their physician in determining the
patient?s management of Lyme disease or other related
infectious diseases. This should include a range of
treatment options that have the potential for symptom relief
and quality of life improvement.
Province of BC should satisfy
itself that that a doctor may prescribe therapy to a patient
that departs from prevailing medical practice, unless it can
be demonstrated that the therapy poses a greater risk to
patient care or safety than does prevailing medical
Province of BC should satisfy
itself that that a doctor will not be investigated solely on
the grounds that the registrant practices complementary
medicine or uses non-traditional
particular recommendations were derived from
page 44 of the report. If you want to read
through the report in its entirety, click here
for a pdf copy.
Health Agency of Canada in the
heard by now that the Public Health Agency of Canada (PHAC)
announced on February 25, 2011 that, due
to rigorous quality-control procedures, they had
ascertained that 24 patients out of 1,557 samples tested by
the National Microbiology Lab for Lyme disease had received
false-negative test results. If you haven't heard
and want to read more, the statement can be viewed
While news of
false-negatives is not particularly surprising to
those of us dealing with Lyme on a regular basis, PHAC is
to be applauded for making this information public. In
addition, it was encouraging to see PHAC publicly
reaffirming (not once, but twice in the same statement) that
Lyme disease is a clinical diagnosis, as in:
"When someone shows
symptoms of Lyme disease and might have been exposed to the
ticks that carry it, guidelines recommend that physicians
treat the illness, even if it has not been confirmed with
"All laboratory tests
have a margin of error, which is why physicians are
encouraged to follow the recommended treatment guidelines
and treat patients they suspect may have Lyme disease with
antibiotics, even without the results of lab
Now, if we could just get the
medical profession to start following the
MIND-BOGGLING STORY (but sadly, not
We are honoured to share with you
the fascinating journey of one young lady and
her parents - from Africa to Canada and from health to
Lyme and back again.
the outside (as told by
lived in Africa for 10 years, we were used to being
alert for signs of illnesses like malaria and filaria;
but in April 2008 when our 11-year old daughter, J., was
having more and more difficulty finishing her homework
assignments on time, we had no idea we were not looking
at a behavioral issue, but rather the start of a long
journey with Lyme disease. . .
Looking in (as told
was becoming more frustrating every day/week. I didn't
want help, but otherwise I couldn't get places fast. I
didn't want to tell my parents, because I didn't want to
seem incapable. This
was the situation: in the first half of May, 2008,
I started repeating my steps, walking somewhere, then
stopping and touching a place a few times. It didn't
really bother me a lot, but it was frustrating that it
was something I knew was wrong, but I didn't want to
tell my parents about it, because it seemed so small and
unexplainable . . . (continued)
NATUROPATHIC PHYSICIANS, LYME
DISEASE, AND YOU
Murakami's presentation to the BC Naturopathic
Physicians' annual conference this past
fall continues to generate substantial interest from
those in the profession who are keen to learn how to
treat Lyme disease using antibiotic protocols, which is
certainly heartening! In case you're not familiar with the
difference between allopathic (conventional) MDs
and naturopathic (alternative) NDs, the British Columbia
Naturopathic Association explains it this way:
difference between allopathic and naturopathic care may lie
in the NDs emphasis on nutrition and diet, lifestyle change,
and the importance for patients to manage their own
be an important distinction to remember if you
choose to go the ND route. Just because NDs now have
the authority to write prescriptions doesn't mean that
they will want to use antibiotics as their
first-line treatment for Lyme disease. When meeting with
your ND, keep an open mind and be upfront when discussing your
treatment options, including the use of
that Dr. Murakami continues to be available to consult with
both MDs and NDs.
We've added an Archives section to capture all
the information that is just too important to delete
forever, but that is being replaced on the Home page
by more current information. If you're looking for
something that used to be on this page but is no
longer, check out the Archives!
Dr. Murakami continues to be available to consult
with physicians who are interested in learning more
about Lyme disease. If you are a physician, or know
of one who wants to develop a more in-depth understanding
of Lyme and appropriate treatment
protocols, please call 604-869-9922. Dr.
Murakami will return the call as soon as
ARCHIVES . . .
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