-Welcome to our
Site - at
Welcome! Without the generous support
of the Society's donors, Dr. Murakami would not be
able to undertake the extensive Lyme disease education
initiatives that you see listed here. A huge,
heartfelt, THANK YOU goes out to each
and every one of you!
Any feedback or notice of problems
encountered would be very much appreciated at
Here is the
radio interview with
that was aired on
live 88.5fm in Ottawa 26th November 2012.
If more Lymies would write their story and send to
newspapers and radio stations, stand tall and shout our
story, the bigger difference we'll make.
The Chronic Complex
Diseases (CCD) study could be beneficial for Lyme
patients and so the Murakami Lyme Society asks that you
make your own informed decision. Keep in mind also that
you can leave the study at any time.
For more information please follow these
CCD Study Flyer with Tear-offs
CCD Study Consent Form then if
interested contact -
phone: 604-682-2344 X 62492
Participants Wanted for Scientific Study
. Dr Murakami is looking for anyone who fits the
• Bull’s eye rash
• Given only 2 capsules Doxycycline
• Have photo of rash
Only those who fit the above can be included
in this study. Contact Dr Ernie Murakami, phone
DREAM WHICH CAME TRUE.
The month of May is for the spreading of the
information on Lyme disease to the general public.
I wondered what I could do personally differently besides
giving lectures on the international level and locally
such as next week at the Boucher Institute of Medicine to
the graduating class..
I thought that I would specifically honour my
Parents and Dr. Robert Kerr and wife Lois,( Clinical
Associate Professor head of the department of Internal
Medicine at the University of British Columbia Medical
I was fortunately able to reside with Dr. Kerr's family
when they took me on as an older brother for their three
sons John, Jamie and Charles.
They treated me like a family member and we participated
in golfing skiing and attending church.
I was always interested in Medicine when my class mate had
died of abdominal injuries in Lillooet B.C. during our
forced Internship during WWII since there was no Doctor or
Hospital available then for him.
As well when my sister was the first citizen to receive
Penicillin in Vernon B.C. and when she came back to life
from a comatose state my interest in Medicine became an
My parents would have liked me to take up medicine but
they were very realistic and advised me constantly that
they were financially not able to consider the cost of a
One evening Dr. Kerr asked me what my plans were for the
future I and specified that I was interested in a medical
career but not it was not financially possible due to
losses from the internment.
To this day I recall him saying "you go into Medicine and
not worry about a thing". Without his family
and my parents support I would not have have had the
confidence and the financial support that I needed to
become a physician.
I would like to thank and salute my parents and Dr. R. B.
Kerr family for a future in medicine that has been a dream
Mr. James and Mrs. Ruth Murakami
Mrs. Lois Kerr and Dr. Robert Kerr.
RADIO TALK SHOW FEATURING ... our
very own Dr. Murakami
The good doctor is
reaching out using a new medium! Dr. Murakami is going to
be hosting a radio talk every Sunday from 7-9 pm EST on
the In Short Order radio show for health care
professionals at BlogTalkRadio. In case you're wondering
what, exactly, BlogTalkRadio is, here's some info taken
directly from their website:
allows anyone, anywhere the ability to host a live talk
radio show online... (It) empowers citizen broadcasters
to create and share their original content, their voices
and their opinions in a worldwide public forum. Today,
BlogTalkRadio is the largest and fastest growing online
talk radio network. A truly democratized medium,
BlogTalkRadio has tens of thousands of hosts and
millions of listeners tuning in and joining the
conversation each month.
Check out Dr. Murakami's lecture video from the Chronic
Cerebrospinal Venous Insufficiency (CCSVI) Conference held
in Dartmouth, Nova Scotia on October 21, 2011.
Schmidt Report on Chronic Lyme
Disease in British Columbia
56-page document, obtained through a Freedom of
Information request to government by a long-time Lyme
sufferer, received some well-deserved major coverage in
the Vancouver Sun at the end of March 2011. Dr. Murakami
was particularly encouraged by three of the eight
recommendations put forward in this report as follows:
Chronic Lyme and related diseases present a significant
burden on patients who are sometimes given few options
or hope. A realistic but flexible approach is needed for
each patient with their physician in determining the
patient?s management of Lyme disease or other related
infectious diseases. This should include a range of
treatment options that have the potential for symptom
relief and quality of life improvement.
BC should satisfy itself that that a doctor
may prescribe therapy to a patient that departs from
prevailing medical practice, unless it can be
demonstrated that the therapy poses a greater risk to
patient care or safety than does prevailing medical
BC should satisfy itself that that a doctor
will not be investigated solely on the grounds that the
registrant practices complementary medicine or uses
particular recommendations were derived from page 44 of
the report. If you want to read through the report in its
here for a pdf copy.
Public Health Agency of Canada in the News
likely heard by now that the Public Health Agency of
Canada (PHAC) announced on February 25, 2011 that, due
to rigorous quality-control procedures, they had
ascertained that 24 patients out of 1,557 samples tested
by the National Microbiology Lab for Lyme disease had
received false-negative test results. If you
haven't heard and want to read more, the statement can
news of false-negatives is not particularly
surprising to those of us dealing with Lyme on a regular
basis, PHAC is to be applauded for making this
information public. In addition, it was encouraging to
see PHAC publicly reaffirming (not once, but twice in
the same statement) that Lyme disease is a clinical
diagnosis, as in:
someone shows symptoms of Lyme disease and might
have been exposed to the ticks that carry it,
guidelines recommend that physicians treat the
illness, even if it has not been confirmed with
laboratory tests have a margin of error, which is
why physicians are encouraged to follow the
recommended treatment guidelines and treat patients
they suspect may have Lyme disease with antibiotics,
even without the results of lab tests."
Now, if we could
just get the medical profession to start following the
A MIND-BOGGLING STORY (but
sadly, not unfamiliar)
We are honoured to share with you
the fascinating journey of one young lady and her
parents - from Africa to Canada and from health to Lyme
and back again.
From the outside (as
told by J.'s parents)
Having lived in Africa for 10 years, we were used to
being alert for signs of illnesses like malaria and
filaria; but in April 2008 when our 11-year old
daughter, J., was having more and more difficulty
finishing her homework assignments on time, we had
no idea we were not looking at a behavioral issue,
but rather the start of a long journey with Lyme
disease. . .
Looking in (as told by J.S.)
It was becoming more frustrating every day/week. I
didn't want help, but otherwise I couldn't get
places fast. I didn't want to tell my parents,
because I didn't want to seem incapable.
This was the situation: in the first half of May,
2008, I started repeating my steps, walking
somewhere, then stopping and touching a place a few
times. It didn't really bother me a lot, but it was
frustrating that it was something I knew was wrong,
but I didn't want to tell my parents about it,
because it seemed so small and unexplainable . . .
PHYSICIANS, LYME DISEASE, AND YOU
Murakami's presentation to the BC Naturopathic
Physicians' annual conference this past fall continues
to generate substantial interest from those in the
profession who are keen to learn how to treat Lyme
disease using antibiotic protocols, which is certainly
heartening! In case you're not familiar with the
difference between allopathic (conventional) MDs
and naturopathic (alternative) NDs, the British Columbia
Naturopathic Association explains it this way:
"A difference between allopathic and naturopathic
care may lie in the NDs emphasis on nutrition and
diet, lifestyle change, and the importance for
patients to manage their own long-term health"
will be an important distinction to remember if you
choose to go the ND route. Just because NDs now have the
authority to write prescriptions doesn't mean that they
will want to use antibiotics as their first-line
treatment for Lyme disease. When meeting with your ND,
keep an open mind and be upfront when discussing your
treatment options, including the use of antibiotics.
remember that Dr. Murakami continues to be available to
consult with both MDs and NDs.
We've added an Archives section to capture all
the information that is just too important to delete
forever, but that is being replaced on the Home page by more
current information. If you're looking for something that
used to be on this page but is no longer, check out the
Dr. Murakami continues to be available to consult
with physicians who are interested in learning more about
Lyme disease. If you are a physician, or know of one who
wants to develop a more in-depth understanding of Lyme
and appropriate treatment protocols, please call
604-869-9922. Dr. Murakami will return the call
as soon as possible.
IN THE ARCHIVES . . .
A popular forum for members wishing to discuss Lyme and
issues surrounding Lyme with a support community or to
ask Dr. M questions regarding the disease.
Visit Our Facebook Page!
We're on Facebook! We've set up a regular page as well
as a Causes page for all our members.